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How does patient engagement improve clinical research?

The MUHC-ISAI’s 2016 Research Symposium
June 30, 2016, 9:00 to 13:00
Auditorium of the Research Institute of the MUHC, 1001 Decarie blvd, Montreal

This 2016 Research Symposium of the MUHC-ISAI will introduce two internationally acclaimed initiatives — C3N and PatientsLikeMe — that are narrowing the distance between patient and researcher and have the potential to dramatically accelerate and improve the development and adoption of therapies that respond to patient priorities. Following these presentations, a roundtable discussion among Quebec government, research, patient and industry leaders will explore how organizations are engaging patients in the research enterprise and what they see for the future.

Symposium chairs:
Dr. Vassilios Papadopoulos, Executive Director and Chief Scientific Officer, RI-MUHC;
Dr. Jean Bourbeau, Director, Centre for Innovative Medicine, RI-MUHC;
Ms. Patricia O’Connor, Senior Advisor, Patient Engagement, MUHC.

Keynote speakers include Dr. Peter Margolis, Co-Principal Investigator, C3N; Director of Research and Associate Director, James M. Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center; Ms. Jennie David, Patient C3N Improve Care Now participant; and Dr. Emil Chiauzzi, Research Director, Client Services, Patients Like Me

The roundtable discussion, chaired by Dr. Jean Bourbeau, includes Mr. Mario Di Carlo, Patient Advisor; Mr. Paul Lirette, President, GlaxoSmithKline Canada; Dr. Marc Lefebvre, Scientific Director, Algorithme Pharma; and Dr. Susan Bartlett, Associate Professor, Faculty of Medicine, Ï㽶ÊÓƵ; Canadian representative, Patient Reported Outcomes Measurement Information System (PROMIS) International Steering Committee; Dr. Michel Bureau, Associate Deputy Minister, Health Services and Academic Medicine, Ministry of Health and Social Services, Québec (invited)

Registration is free of charge but on a first-come basis, with a room capacity of 200.
Register here:

Questions? Please contact Susan Usher, Co-Chair, MUHC-ISAI at usher [at] healthinnovationforum.org