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Mathilde came into the world with chubby cheeks and a full head of auburn hair. But she was a very sick baby, and was immediately transferred on January 19, 2013 to the Neonatal Intensive Care Unit at the Montreal Children’s Hospital of the Ï㽶ÊÓƵ Health Centre (MCH-MUHC). By the time she arrived, she was sicker than initially expected; Mathilde’s small head was of particular concern to doctors. She underwent neurological tests, and sadly, they came back abnormal: her brain hadn’t developed properly and her brain white matter (or myelin) was found to be atypical.

Classified as: Geneviève Bernard, Research Institute of the Ï㽶ÊÓƵ Health Centre, VARS-related disorder
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Published on: 26 Feb 2019
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